DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.message sent
email sent successfully
rareLife solutions 606 Post Road East #397 Westport, CT 06880 |
||
You are receiving this because you have an account on www.oneAMYLOIDOSISvoice.com | ||
To unsubscribe from these emails, click here |
Trusted Resources: Community Center
Online support, community stories, financial assistance
My hATTR Amyloidosis Story: A Diagnosis Leads to Advocacy
Jean Williams, 65, has been seeing the same primary care physician for years. Perhaps this familiarity afforded her the ease with which to openly discuss her care.
A veteran traveler, Jean had experienced symptoms of hereditary ATTR (hATTR) amyloidosis, a rare disease characterized by the buildup of misfolded transthyretin proteins (known as amyloid deposits) in the body, for a long time. The symptoms of hATTR amyloidosis can vary widely and affect several parts of the body, including the peripheral nervous system, cardiac system and autonomic nervous system.
Related Content
-
people & placesKelsey Barrell, MDKelsey Barrell is an Assistant Professor...
-
news & meetingsKansas City — Amyloidosis Support Groups Meeting — LIVE — Saturday, April 20, 2024If you are from Kansas, Nebraska, Missou...
-
people & placesIsabel Morgado, PhDDr. Isabel Morgado is working as a Sci...
-
people & placesAngela Dispenzieri, MDAngela Dispenzieri is a Chair of Hematol...
-
people & placesMackenzie’s MissionWhy Mackenzie’s Mission As a result o...
-
people & placesUNC Lineberger Comprehensive Cancer CenterUNC Lineberger Comprehensive Cancer Cent...
-
educationSafety and Efficacy of Long-Term Diflunisal Administration in Hereditary Transthyretin (ATTR) AmyloidosisBackground: A recent 2-year randomized ...
send a message
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences.
More information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.